Sometimes parenting a child with a disability creates a very long weekend, long days.. I'd rather be working.. I, as much as my child, crave the daily routine.. She is so adaptable, probably more than I am.
Some would say I'm nuts for not needing/wanting the extra day off..but after what feels like the longest weekend ever, I'm ready to go back to work.
Grace is wonderful.. yesterday she had a large POOP explosion! I don't know if it's because of her CP or what..but she has pooping issues..the only medication she is on, believe it or not is to help regulate her & supposedly to help her.. it doesn't seem to help though.. it's either always or nothing. We are actually at our wit's end about it.. we have seen a G.I. specialist for about a year now, I think our February appointment might just be "WTF guy, we need some help". (trust me we've said that before).
Anyway, today is a new day.. just make the best of a day off!
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